We have talked to the Neonatalogist. Janie Beth does in fact have the Thanatophoric Dwarfism. We are going to keep her hooked up to the machines for a few more hours to let people spend some time with her before taking her off. Then, we will take her off of the machines and bring her to the room and keep her with us for however long she lasts, and probably then some. We don't know for sure how long she will last off of the machines. It could be minutes, hours, or even days.
I am sad that she will be leaving us, but I am excited to be able to hold her. She is so precious and cute. We said this would be easier if she weren't so cute. :) We are so thankful for the time that she has been with us and will be with us.
God is continuing to bless us and fill me with His peace. I am so thankful that He is here!!! May you all continue to pray for God's peace and grace to fill this time. We want God glorified through Janie Beth's journey.
Praying for you my sweet friend.
ReplyDeleteLove,
Nikki Tibbetts
Schelle
ReplyDeleteI will continue to pray for you and your family. Your strength is a testimony to God's grace. Love, Swtlat from the PW board
Have to sign off now and get lunch and wait for a trustee to come, ah, the 'joys' of parsonage living. Will be praying for you all this afternoon. ((((((HUGS)))))) "D" from the pw board.
ReplyDeleteWe love you so much Michelle. We are on our way now to meet this precious child. Julie
ReplyDeletePraying for you, Michelle... for peace as you enjoy those sweet moments with your precious daughter, for grace as you prepare to say goodbye.
ReplyDeleteJanie Beth really is a cutie!!!
Continuing to pray that God will bring you joy and peace in your time with this precious little one.
ReplyDeleteI will keep you all close in prayer today as you cuddle Janie Beth.
ReplyDeleteRomans 8:26
In the same way, the Spirit helps us in our weakness. We do not know what we ought to pray for, but the Spirit himself intercedes for us with groans that words cannot express. 27And he who searches our hearts knows the mind of the Spirit, because the Spirit intercedes for the saints in accordance with God's will.
Pamt
Moriah just asked me how the Lord can use the passing of Janie Beth to bring someone to the Lord. I told her the story of my brother's salvation. When I was teenager there was a young man in my church (10 or 11 years old) who came down with cancer. He loved the Lord with all his heart. He struggled for a long time, but was finally taken home to be healed in the presence of his Lord Jesus Christ. My brother, an adult (married with two children), was raised in a Christian home, but was not saved and was not living for the Lord in any way, shape, or form. He saw the faith of that little boy and the Lord used it to convict his heart. One morning he got down on his knees and confessed his sins to the Lord. He asked Jesus to be his personal Savior. My brother has been a completely changed man since that day. The Lord can and does use tragedy to bring His lost lambs into the fold.
ReplyDeleteThanks you for sharing your story with us. I am sitting here admiring how brave and trusting you all our. Take care and may God bless you time with Janie Beth. (((HUGS)))
ReplyDeleteElizabeth (aka Beth)
Praying for you all... Michelle you are such a testament of faith! ((HUGE HUGS!!)) Cherish the time the Lord has given you, I am praying that your memory will be sharp and focused to remember each precious second you have with your sweet little girl! -Deana (SufficientGrace from the PW board)
ReplyDeletePraying from afar for you and your family! (((Hugs))) ~ Tammy (godsgirltmm from the PW Board)
ReplyDeleteI'm praying for all of you...and amazed at the strength and peace God is blessing you with.
ReplyDelete(hugs)
Melanie (from the PW Board)