We have talked to the Neonatalogist. Janie Beth does in fact have the Thanatophoric Dwarfism. We are going to keep her hooked up to the machines for a few more hours to let people spend some time with her before taking her off. Then, we will take her off of the machines and bring her to the room and keep her with us for however long she lasts, and probably then some. We don't know for sure how long she will last off of the machines. It could be minutes, hours, or even days.
I am sad that she will be leaving us, but I am excited to be able to hold her. She is so precious and cute. We said this would be easier if she weren't so cute. :) We are so thankful for the time that she has been with us and will be with us.
God is continuing to bless us and fill me with His peace. I am so thankful that He is here!!! May you all continue to pray for God's peace and grace to fill this time. We want God glorified through Janie Beth's journey.